Today marked one full month without a seizure. It's been pretty crazy. Ngaire was sick with a cold or flu when she went seizure free and her ketones were pretty low. Once she got better, she seemed to become a ketone producing champ and probably became acidotic causing her to throw up. Once we got into that state it was really hard to recover. It's a vicious cycle. She felt nauseous and wouldn't because she was overly ketotic and was probably overly ketotic because she needed to eat. Anyway, we ended up giving her 2 tablespoons of apple juice every time her ketones got over 7. We also lowered her ratio to 3.75:1. Slowly the cycle of throwing up and not being able to eat has been broken. Today she ate her full allotment of calories. She seems a lot better. Anyway, hopefully we'll continue with the seizure freedom!
It was also her 4th birthday on the 17th and she is now able to peddle and steer her bike! I teared up when I saw her riding round out front.