On tender hooks

By rainkinz on Jun 04, 2012, comments 7

Ngaire hadn't had any seizures since Thursday. We were beginning to think we'd got control again, until this morning, when she had one kind of long one with some drooling even and another that was more of her normal blinking type. We're now giving her an extra snack right before bed to 'keep some fuel in the fire' as the doctor put it. Her ketones were 160 this morning, the highest they've been in the morning in ages. Of course it's hard to gauge if there is any real correlation. Ngaire has had a value of 40 in the morning plenty of times over the last few months and not had seizures and similarly she's had values of 160 and no seizures. I'm really wondering if the bump she got on her head a couple of weeks ago has kicked this whole thing off...the doctor doesn't think so. Unfortunately we've had a lot of little changes all at once so it's really hard to figure out if there is one thing that is causing this, it's a combination of things, or it was just going to happen anyway....I guess it's in God's hands right now.

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Edb2e2e8b82f64154f182aa2a710cf1c.png?s=48&d=http%3a%2f%2fkuripai.com%2fassets%2fguest Hollie on Jan 06, 2016 at 7:18 PM

This arctlie is a home run, pure and simple!

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Edb2e2e8b82f64154f182aa2a710cf1c.png?s=48&d=http%3a%2f%2fkuripai.com%2fassets%2fguest Hollie on Jan 06, 2016 at 7:18 PM

This arctlie is a home run, pure and simple!

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